Ataxia: “Is anyone out there? I’ve decided I’m going to use a wheelchair and would like to hear some advice”

image source, Tallulah Clark

caption

Tallulah started to notice that something wasn’t right when she was about 14 years old.

  • author, Tallulah Clark
  • Role, Special for BBC World

I didn’t know she was stubborn. But we are all proud, and for a long time, she won me over. My pride got the best of my physical and mental health, probably for too long.

I think I may have been lying to myself and others, because accepting that I need help is not easy.

Six years ago, I was diagnosed with a very rare neurological condition called ataxia, a term that includes a group of disorders that affect coordination, balance, and speech, with symptoms that vary depending on which type of ataxia is involved.

Since then, accepting the changes has been a challenge.

Leave a Reply

Your email address will not be published. Required fields are marked *